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Policy Preferences Regarding Health Data Sharing Among Patients With Cancer: Public Deliberations

BACKGROUND: Precision health offers the promise of advancing clinical care in data-driven, evidence-based, and personalized ways. However, complex data sharing infrastructures, for-profit (commercial) and nonprofit partnerships, and systems for data governance have been created with little attention...

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Detalles Bibliográficos
Autores principales: Raj, Minakshi, Ryan, Kerry, Amara, Philip Sahr, Nong, Paige, Calhoun, Karen, Trinidad, M Grace, Thiel, Daniel, Spector-Bagdady, Kayte, De Vries, Raymond, Kardia, Sharon, Platt, Jodyn
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9929721/
https://www.ncbi.nlm.nih.gov/pubmed/36719719
http://dx.doi.org/10.2196/39631