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Psychosocial implications of rare genetic skin diseases affecting appearance on daily life experiences, emotional state, self-perception and quality of life in adults: a systematic review

BACKGROUND: Since the beginning of human genetic research, there are very few publications sharing insights of the negative impact of rare genetic skin diseases (RGSD) on patients’ experiences. This systematic review assessed the psychosocial implications of these conditions in terms of daily life e...

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Detalles Bibliográficos
Autores principales: Fournier, Hugo, Calcagni, Nicolas, Morice-Picard, Fanny, Quintard, Bruno
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2023
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9951542/
https://www.ncbi.nlm.nih.gov/pubmed/36823650
http://dx.doi.org/10.1186/s13023-023-02629-1