Identifying the unmet health needs of patients with congenital hypogonadotropic hypogonadism using a web-based needs assessment: implications for online interventions and peer-to-peer support

BACKGROUND: Patients with rare diseases such as congenital hypogonadotropic hypogonadism (CHH) are dispersed, often challenged to find specialized care and face other health disparities. The internet has the potential to reach a wide audience of rare disease patients and can help connect patients an...

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Detalles Bibliográficos
Autores principales: Dwyer, Andrew A, Quinton, Richard, Morin, Diane, Pitteloud, Nelly
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2014
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4059885/
https://www.ncbi.nlm.nih.gov/pubmed/24915927
http://dx.doi.org/10.1186/1750-1172-9-83

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